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the adventures of a MAD mom

Until May of 2009 my life was relatively normal.  Relatively, I say, because we were a family living with Autism.  Our oldest son was diagnosed with Aspergers Syndrome in 2001, when he was 5.  After years of various therapies we found ourselves coming out on the other side.  He was doing well in school and having other interests in life.  His behavior challenges were almost gone, with typical adolescents stuff taking their place.   We were all accustomed to his quirks, and he to us “typicals”. 

So it almost knocked the wind out of me when our doctor diagnosed my youngest son, Casey, with epilepsy.  Just shy of 10 years old, I had no idea one could be diagnosed at this late age.  I quickly learned this was quite typical and dived head on into the world of epilepsy.  After trying 9 different drugs, none of which stopped the seizures (other than one which gave him such debilitating side effects that we had to discontinue use) we heard about the Modified Atkins Diet for Seizures.  Skeptical, I read as much as I could on the subject.  Trouble was, there was not much information on pre-teens and the diet. 

Our doctor told us Casey would be one of two pre-teen/teens on the diet in his whole practice, and this is UCLA we are talking about, folks.  The books and articles I read discussed children whose parents had total control of what they ate, but not an 11 year old middle-schooler who could eat what he wanted when he wanted.  But Casey has always been a special kid, and his doctor was pretty convinced he was a good candidate. 

It’s not like we had a lot of options.  Casey was having upward of 50 seizures a day at this point, and he was not a surgical candidate.  Since we had already gone through the endless hours of research once with Autism, I decided to start this blog so that other families making a decision about trying the Modified Atkins Diet for Seizures might have some insight into daily life on the diet. 

WARNING:  The stories you read are true, and may make you laugh or cry or sometimes both.  Each child reacts very differently to the diet we are told, so this blog is not for comparisons, but just to offer our hopefully helpful experiences – the good, the bad and the ugly.  Come along for the ride, wherever it may take us.

-Annette

modifiedmom

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