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the adventures of a MAD mom

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Some exciting news from The Epilepsy Foundation recently arrived for Casey.  He was one of 5 teens chosen to represent the Epilepsy Foundation of Greater Los Angeles in their 2013 Kids Speak Up Program.  Casey, along with the other teens, will travel to Washington D.C. to speak up and speak out to Congress and other local policymakers about the ways to help bring more awareness about what it means to live with epilepsy.

Casey was able to meet the other teens at a pre-planning meeting for the event.  What a great group of kids it is, and wonderful that they could all come together to share their stories.  In their immediate bonding, I could see how important it is for them to share with each other what only they experience.

One of the participants, Selina Smith Budinger, 18, is taking on a fundraising event that would impress those with years of experience.  Yet this is her first time planning such an event.  Please take a look at her website, and better yet, if you are in the area join in a wonderful day – Raising Hope for Epilepsy, A Charity Polo Event.   There are also sponsor opportunities available.

http://poloforhope.kintera.org/faf/home/default.asp?ievent=1061112&lis=1&kntae1061112=2F20528E9BD34FA48B8D920B05FA7FF3

I will be posting more about the Washington D.C. trip as it nears and would love to hear from other families what messages or information they would like to have conveyed to Congress.

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